I didn’t get to participate in #MHAM this year (more on why later), but I’m happy to report that many of my fellow migraine advocates were out in force, writing fierce articles and attending various events throughout the U.S. and beyond in order to spread awareness of this chronic, incurable disease. Here are a few of my favorite picks from the month for anyone who might have missed the flurry of activity:
The Unpredictability of Life With Chronic Migraine, from The Mighty
CGRP Approved, Now What? from Migraine.com (Not sure what CGRPs are? Read this.)
Why Does Migraine Matter? from The Migraine Mantras
When Coworkers See You Work on a Sick Day, from Migraine.com
How to Show Kindness to People in Pain, from Migraine Again with Shaunti Feldhahn
Diagnosis Isn’t a One-Time Thing, from Migraine.com
Migraine Community Mobilizes in Response to Recent ‘Migraine Pose’ Article, by AMF
Note: If you missed the backlash against Elle Magazine’s “Migraine Pose” article, do yourself a favor and check out Instagram and Twitter with the #migrainepose and #truemigrainepose hashtags. The community’s response was inspiring. (And it is the one piece of advocacy I was actually able to attempt last month.)
Here’s wishing you all a healthy, happy, and peaceful summer. 🙂
As many of you know, I tried Topamax for a while back in 2008 with high hopes. Instead, of offering me relief, however, it turned me into a confused, emotionally unstable, skeleton. Now, there may be a new drug that offers an alternative to people for whom Topamax should work but doesn’t, and for whom the side effects make it unpleasant to take.
According to James at Headache and Migraine News, the drug study targeted people who had mild reactions to Topamax and didn’t see the improvements they and their doctors expected to see. This means that it probably wouldn’t be much help for me, seeing as my reactions to the drug were anything but mild. However, this may be of interest to some of you.
Read James’ full post here.
I can’t believe it’s already February! I’m still catching up on my 2013 to-do list, and here it is almost Valentine’s Day. Thankfully, I recently hired a mother’s helper for a few hours per week, so I’m hoping to start checking stuff off on a more regular basis.
This year, I wanted to start a monthly round-up of my blog posts (in case anyone missed one) as well as a few of my favorites from other people around the blogosphere. I meant to do this at the end of January, but, well, see above. So, deadlines and dates be damned! Here are January’s:
- Help (Not) Wanted by Katie – December 31, 2013 (Technically a December post, but I couldn’t help throwing it in here, because making an Action Plan is a great idea!)
- Fallow: Remembering that Before Birth Comes the Cave by Cassie Premo Steele – January 19, 2014 (This one isn’t migraine-related, but I found it an interesting read, and thought other migraine mamas might, too.)
- The Decision to Say No by Migrainista – January 21, 2014
- How to Tap Into Creativity on Your Own Terms by Marion Roach – January 29, 2014 (Again, not migraine-related, but I thought some of you might find it interesting anyway. I know I did.)
In other news, BeliefNet.com recently posted an excerpt of my book, “Finding Happiness with Migraines: A Do-It-Yourself Guide.” Read more here!